MY FACE / Facial Paralysis Support Network
"Friendship is born at that moment when one person says to another, 'What! You too? I thought I was the only one'"- C.S. Lewis

MY FACE / Facial Paralysis Support Network

 

J
oin the Facial Nerve Circle of Support on the first Friday of each month, 5:30 PM, at the Facial Nerve Center, MEEI, 9th Floor

For more information or to RSVP email: mikestephsasha@gmail.com  or lrodriguez78@gmail.com  

 

 

 

 

 

 

The Facial Paralysis Support Network is borne of a forum of individuals with facial paralysis, caused by damage or trauma to the facial nerve. The condition is often the result of Bell’s Palsy or the byproduct of cranial surgery to remove acoustic neuromas and other brain tumors. These relatively uncommon and very different conditions generally share the same physical and emotional symptoms as well as courses of treatment. 

Yet, these traditionally underserved populations often experience dismissal from the medical community which offers few supports, taking a “wait and see” stance, offering that the facial nerve is mysterious and unpredictable, while sufferers are left feeling powerless, twisting in the wind, alone. Many of us (and yes this writer, educator and advocate included) are left to cope in isolation, cobbling together shattered self-esteem, desperate for treatment and answers- not to mention the daily physical (often intense) and emotional discomfort of facing the world- with MY FACE… forever. 

History: The Facial Paralysis Support Group, was officially launched 
April 4th, 2008 at the, Facial Nerve Center, of Boston, one of a few of such facilities in the USA. The group was founded by tireless facial paralysis patients, facing similar circumstances, wishing for a forum for discussing the specific issues we confront and must learn to cope with, which can be very isolating, when few can identify. In response to our urging, the Facial Nerve Center's giving, professional staff facilitated the group's formal establishment. It has been an incredible experience to meet and talk with faces just like ours who are facing head on these unique set of physical and emotional challenges. The goal of this page and forum is to provide Facial paralysis patients with another means whereby we can connect.

Who we are / Mission / Vision
Who are we? This group is the product of bonds forged by a few facial paralysis patients who found each other and the professionals who supported them.
Mission & Vision  What We Do?                            
The mission of the Facial Paralysis
Support Network
is to pro
paralysis patients with a forum to,
share experiences and strategies,
each other, disseminate information and 
facilitate communications processes to 
form a network.

MY FACE serves as an outlet for 
the expression of triumphs, challenges, and frustrations
associated with facial paralysis.
Meeting- The 1st Friday of every month,
to discuss the unique issues associated
with facial paralysis, sharing concerns,
experiences, and advice.

Support- to facilitate coping
Medical information- Discuss medical
treatments and experiences regarding 
treatments

Treatment Strategies- Explore and share
holistic supplementary treatment options 
& additional physical & emotional coping
strategies.

 



 

MY FACE Facial Paralysis Support Network